"Do you not know that in a race all the runners run but only one gets the prize? Run in such a way as to get the prize." 1 Corinthians 9:24
Exercise may or may not be for you. You may joke that the only time you run is if someone is chasing you! There's all sort of runners in this world. Personally, I love to run. I find comfort and strength in a good hard run. It's a way to release stress and gather my thoughts. I'm not the fastest or best runner by any means, but I try to enjoy every run and make it count.
Whether you realize it or not you are running a race. We all are. Life is a race. It's not about how fast you run or the length of time it took you to finish. In fact, the act of "running" is actually just a forward motion. Envision yourself going through each day. Each moment of your life is a part of your journey. There is no turning back, only that forward motion. One day your race will be over and all that will be left is a memory. A memory and your legacy.
What kind of race are you running? Do you grumble and complain from one day to the next? Is your race full of excuses why your performance could have been better? Do you get easily distracted and easily persuaded by others? When the world tells you to turn right because that's where the party is, do you listen? :) Or perhaps others try to convince you to quit, depriving you of the confidence it takes to finish strong.
Hopefully by comparison, you are a cheerful runner! One who chooses to run fastidiously from one strength to another ready to take on every challenge. Other runners admire you because you press ahead faithfully, persistently, and give all that you have.
A steadfast runner doesn't look left or right but instead stays focused on the finish line and the ultimate prize. As they keep their eye on the mark others see their fierce determination and choose to emulate such dedication. A spark is ignited and the desire to achieve a grand finish becomes infectious.
When it comes to this life, we are each given just one opportunity-one RACE. There will not be ONE single winner. All runners who have kept their eyes focused on the finish and kept their faith will receive the greatest prize of all. The judge of eternal life sits on His throne at the end of our journey. He does not discriminate and has given each of us the option to receive the same reward. All we have to do is accept His gift. It's free for those who accept it and believe in Him.
He has watched how we have "run" our race and He knows that we may not be the fastest runner or the one who has put in the most miles. To Him, none of that matters. What does matter is whether or not we've chosen to stay on the course and finish the race. Did we keep or lose our faith? Did we waver or stay strong and committed?
The race I am running is already filled with imperfections and many mistakes. I try to learn from each one so that I won't repeat them in the future.
What I would like for people to see is a fierce determination and steadfast runner who refuses to give up. A runner who keeps her eyes on the finish, has a love for others, a love for life, and a love for Christ. I want to stay the course so that when I take my last breath, I will know WITHOUT question that "I fought the good fight, I have finished the race, I have KEPT the faith."
(2 Timothy 4:7)
For the skeptic or atheist, you may roll your eyes, laugh, or think I have lost my mind! :) All of that is okay by me. I know that my days on earth are numbered. Dealing with a debilitating chronic illness makes it even easier for me to appreciate each day, whether it be good or bad. Life is short and precious. The truth is, I will not live forever. None of us will. My life will also most likely be cut short due to my illness. How do I deal with that? I choose NOW to step up to the starting line and give it all that I have. With every ounce of faith in me, I will do my best to remain steadfast and stay the course all the way to the finish line. So what if I'm wrong and there is no God, no heaven, no "prize" at the end of this life? When I die, I just die? Nothing happens, I just slowly disintergrate underground.
If I choose not to believe and there is a God, I have everything to lose. By denying the one who gave His life to save ours, we automatically forfeit the prize at the end of our race. When that prize happens to be eternal life it's the loss of a lifetime.
So what if my beliefs are accurate? What if I told you that based on life experience, near death experiences and a whole lot of other craziness in between, I KNOW beyond a shadow of a doubt, there is a God?
I can tell you now what that means for me is that I choose to run the race of a lifetime! It's the only one I have and the only chance I get. When my heart stops beating and my broken body stops, I will have reached the finish. The shell of what is left of my body will remain, but my spirit will soar for eternity. My final resting place (my prize) will be a place of no more pain, no more tears, no sadness or grief and NO MORE CROHN'S DISEASE!
I hope today that you are running the kind of race that you'd like to be running. If you aren't, it isn't too late to get back on that course!! You won't regret it and after all it IS the race of your lifetime!
Monday, October 7, 2013
Saturday, July 20, 2013
"Sometimes He Calms the Storm..
..and sometimes He calms His child."
What a month it has been for me. I have been meaning to blog and update all of my faithful friends on how well I have been doing since starting Remicade one month ago. I appreciate all of the thoughts, prayers, texts, messages, and calls inquiring about my state of health.
I received two doses of Remicade within a 2-week time period at the end of June/first of July. Since it is very similar to chemotherapy, I was pretty well knocked out of commission for the days of treatment and for several days after each dose. I called these first two doses the "double whammy". Each time after treatment, I would spike a fever and experience significant body aches and chills. Similar to the flu, all I wanted to do was to sleep, but getting comfortable enough to do so was a challenge.
Once the fever/aches and chills phase wore off, I was so exhausted that I slept for most of an 18-hour time period. Doing my job was a challenge, but I am fortunate to be able to create my own schedule and was able to see all of my patients both weeks of treatment.
Fast forward exactly one month to July 20th, and I can honestly say that the past couple of weeks has been amazing. I have had plenty of energy and been able to spend lots of precious times with my boys. My life is still ultimate chaos, but I wouldn't have it any other way. I consider myself extremely blessed and surrounded with outstanding people/athletes/friends.
Despite the current update and good news, I remain in a stormy season. After a stressful week, I was reminded last night of just how rapidly my health can deteriorate. Remicade has been known to be "liquid gold" to many patients with Crohn's and now I understand why. I almost forgot how sick I was for a couple of weeks. The occasional bout of nausea after eating or the occasional twinge of abdominal pain have been my only reminders this past two weeks. My joint pain has been significantly reduced, and the fatigue has gotten MUCH better.
However, after a demanding week, I let my mind wander last night, and my thoughts began to overwhelm me: My house was a mess, there are piles of laundry to do, my boys are out of town with their dad this weekend and I missed them like crazy already, but also worry about their safety while they are away. My job is demanding, and while I love each patient, there is lots of outside work that must be done and documented in a timely fashion. My parents left for Ireland yesterday and I worry about their safety. There are numerous other "waves" in my life: I struggle with my future as a single parent. It is not ideal, nor do I believe it is God's plan/design for our lives. I worry that my health will interfere with my ability to work and I will lose my job and house. There are times it feels as though I am all alone despite the many incredible friendships I have in my life.
I have found myself asking over and over WHEN will this storm be calmed? When will the dust settle?? When can I stop treading water and not sink? I've cried out to God to calm my storm so that I might have some rest. When I am tired and worn, I want so badly to be healthy and/or "normal" and able to weather any storm.
This past month my storms seemed to be smaller and the rain came with less frequency. Maybe my "storms" were finally beginning to calm? Maybe things were about to get better and it was about time!!
However, last night, the pressures and stress of day to day living and concerns got the best of me. The old familiar burning knife pain began twisting in my left side. According to the latest CT, this is significant inflammation in the colon. Concerning to me because the original site of inflammation and surgical site, was my ileum (causing pain on the right side). Now we know the Crohn's is also damaging my colon. The job for the Remicade is to stop the inflammation and suppress my body from attacking/destroying itself.
The nausea came hard and hit fast last night. There felt to be a second burning knife in my right lower quadrant. Each time it plunged into my abdomen it felt like bees were stinging me on the inside and clear through to my back. There was a burning sensation that I could not ignore in my upper abdomen. It felt like times in the past when I have had ulcers that were actively oozing. I laid very still in hopes that if I didn't move, I would fall asleep and wake up today feeling decent again.
Hours later, it was clear the pain wasn't going to get better, so it was time for an ER visit that included an IV fluid bolus, Morphine (pain) and Zofran for nausea. Two doses of Morphine later and a bag of saline later, I was feeling well enough to go home and sleep off the rest of the flare.
So today I am pretty much worthless. I had been hoping to spend the morning at a triathlon, racing with my tri family, but of course that didn't happen. I am disappointed to miss yet another activity, but I know that there is SO much more to life than a race.
It's almost like a slap in the face to realize that after two good weeks, the pain is still there. My storm STILL exists. Chances are, I will never escape this storm. Instead I will have to learn how to weather it with dignity and grace. Perhaps I have been praying for the wrong thing here: I wanted God to take my storms and make them sunny days again. I wanted to stop having physical pain that quickly turns into emotional pain when I feel that I have let people down or have been unable to fulfill obligations. I wanted to stop worrying about what will or won't happen in my future because of my illness and its unpredictability.
Watching life pass me by today when I would rather be out doing ANYTHING other than sitting inside staring out the window, is a difficult task at hand. But it is where I am. It is where my storm has brought me. Even on a sunny day, I feel my storm rock me to my core.
What I WANT to realize is this: The outcome of my life and my storms are out of my control. What I CAN do is ask that God calm "His child". That child is ME. I can't control things like my illness or other people's actions that might affect my life. I cannot control what happens to my boys when they are out of my sight, or my parents as they travel. What I can control is myself and my own actions. My prayer today is that I will learn to be calm. Calm, quiet, and patient amidst the storms that may come when least expected. I probably don't even need to "learn" how to be calm. All I really need to do is ACCEPT the calm within when it is clear that my external storms will not be calmed (at least not in MY timing).
Many of us are in a stormy season and are waiting to see if the storm will fade or be calmed. Let's ask ourselves this instead: Have we learned to accept the peace and calm offered to us during the midst of our storms? That peace is there, waiting to be accepted and absorbed. Have we decided to accept it?
Apparently, I haven't! One lesson I have revisited over the past 24 hours is that it is not healthy for me to worry, fear, stress, and fret over the circumstance of my life. Most of these circumstances are silly. Does it matter if the laundry gets done, the dishes put away, or the pet hair vacuumed off of the floor? Will my work still be there tomorrow if I don't finish it all today? Yes! It will. It's not going anywhere! Do people think I am a terrible mother when I get sick and can't take care of my own children? These things may matter, but certainly aren't worth the attention and stress they are demanding from me.
In the midst of it all, may I/we learn to look at the big picture and what is REALLY important in this life. May we learn to adjust our actions/attitudes to accommodate the situation, stress, or "storms" that may surround us.
For if we are to remain calm, focused and peaceful despite our circumstances, there is no doubt that we can live in peaceful existence with any storm that comes our way! If your storm isn't being calmed, learn to accept His calm, His peace in the midst of your challenge. If and when you/WE can fully accept it, perhaps we might even find ourselves saying, "LET IT RAIN!". :)
Marcia
My words/song of comfort for the day:
"All who sail the sea of faith,
Find out before too long
How quickly blue skies can grow dark,
And gentle winds grow strong
Suddenly fear is like white water
Pounding on the soul
Still we sail on knowing
That our Lord is in control.
Sometimes He calms the storm,
With a whispered peace be still
He can settle any storm,
But it doesn't mean He will
Sometimes He holds us close
And lets the wind and waves go wild
Sometimes He calms the storm,
And other times, He calms His child.
He has a reason for each trial
That we pass through in life
And though we're shaken
We cannot be pulled apart from Christ
No matter how the driving rain beats down,
On those who hold to faith,
A heart of trust will always
Be a quiet and peaceful place."
-Kevin Stokes/Tony Wood
What a month it has been for me. I have been meaning to blog and update all of my faithful friends on how well I have been doing since starting Remicade one month ago. I appreciate all of the thoughts, prayers, texts, messages, and calls inquiring about my state of health.
I received two doses of Remicade within a 2-week time period at the end of June/first of July. Since it is very similar to chemotherapy, I was pretty well knocked out of commission for the days of treatment and for several days after each dose. I called these first two doses the "double whammy". Each time after treatment, I would spike a fever and experience significant body aches and chills. Similar to the flu, all I wanted to do was to sleep, but getting comfortable enough to do so was a challenge.
Once the fever/aches and chills phase wore off, I was so exhausted that I slept for most of an 18-hour time period. Doing my job was a challenge, but I am fortunate to be able to create my own schedule and was able to see all of my patients both weeks of treatment.
Fast forward exactly one month to July 20th, and I can honestly say that the past couple of weeks has been amazing. I have had plenty of energy and been able to spend lots of precious times with my boys. My life is still ultimate chaos, but I wouldn't have it any other way. I consider myself extremely blessed and surrounded with outstanding people/athletes/friends.
Despite the current update and good news, I remain in a stormy season. After a stressful week, I was reminded last night of just how rapidly my health can deteriorate. Remicade has been known to be "liquid gold" to many patients with Crohn's and now I understand why. I almost forgot how sick I was for a couple of weeks. The occasional bout of nausea after eating or the occasional twinge of abdominal pain have been my only reminders this past two weeks. My joint pain has been significantly reduced, and the fatigue has gotten MUCH better.
However, after a demanding week, I let my mind wander last night, and my thoughts began to overwhelm me: My house was a mess, there are piles of laundry to do, my boys are out of town with their dad this weekend and I missed them like crazy already, but also worry about their safety while they are away. My job is demanding, and while I love each patient, there is lots of outside work that must be done and documented in a timely fashion. My parents left for Ireland yesterday and I worry about their safety. There are numerous other "waves" in my life: I struggle with my future as a single parent. It is not ideal, nor do I believe it is God's plan/design for our lives. I worry that my health will interfere with my ability to work and I will lose my job and house. There are times it feels as though I am all alone despite the many incredible friendships I have in my life.
I have found myself asking over and over WHEN will this storm be calmed? When will the dust settle?? When can I stop treading water and not sink? I've cried out to God to calm my storm so that I might have some rest. When I am tired and worn, I want so badly to be healthy and/or "normal" and able to weather any storm.
This past month my storms seemed to be smaller and the rain came with less frequency. Maybe my "storms" were finally beginning to calm? Maybe things were about to get better and it was about time!!
However, last night, the pressures and stress of day to day living and concerns got the best of me. The old familiar burning knife pain began twisting in my left side. According to the latest CT, this is significant inflammation in the colon. Concerning to me because the original site of inflammation and surgical site, was my ileum (causing pain on the right side). Now we know the Crohn's is also damaging my colon. The job for the Remicade is to stop the inflammation and suppress my body from attacking/destroying itself.
The nausea came hard and hit fast last night. There felt to be a second burning knife in my right lower quadrant. Each time it plunged into my abdomen it felt like bees were stinging me on the inside and clear through to my back. There was a burning sensation that I could not ignore in my upper abdomen. It felt like times in the past when I have had ulcers that were actively oozing. I laid very still in hopes that if I didn't move, I would fall asleep and wake up today feeling decent again.
Hours later, it was clear the pain wasn't going to get better, so it was time for an ER visit that included an IV fluid bolus, Morphine (pain) and Zofran for nausea. Two doses of Morphine later and a bag of saline later, I was feeling well enough to go home and sleep off the rest of the flare.
So today I am pretty much worthless. I had been hoping to spend the morning at a triathlon, racing with my tri family, but of course that didn't happen. I am disappointed to miss yet another activity, but I know that there is SO much more to life than a race.
It's almost like a slap in the face to realize that after two good weeks, the pain is still there. My storm STILL exists. Chances are, I will never escape this storm. Instead I will have to learn how to weather it with dignity and grace. Perhaps I have been praying for the wrong thing here: I wanted God to take my storms and make them sunny days again. I wanted to stop having physical pain that quickly turns into emotional pain when I feel that I have let people down or have been unable to fulfill obligations. I wanted to stop worrying about what will or won't happen in my future because of my illness and its unpredictability.
Watching life pass me by today when I would rather be out doing ANYTHING other than sitting inside staring out the window, is a difficult task at hand. But it is where I am. It is where my storm has brought me. Even on a sunny day, I feel my storm rock me to my core.
What I WANT to realize is this: The outcome of my life and my storms are out of my control. What I CAN do is ask that God calm "His child". That child is ME. I can't control things like my illness or other people's actions that might affect my life. I cannot control what happens to my boys when they are out of my sight, or my parents as they travel. What I can control is myself and my own actions. My prayer today is that I will learn to be calm. Calm, quiet, and patient amidst the storms that may come when least expected. I probably don't even need to "learn" how to be calm. All I really need to do is ACCEPT the calm within when it is clear that my external storms will not be calmed (at least not in MY timing).
Many of us are in a stormy season and are waiting to see if the storm will fade or be calmed. Let's ask ourselves this instead: Have we learned to accept the peace and calm offered to us during the midst of our storms? That peace is there, waiting to be accepted and absorbed. Have we decided to accept it?
Apparently, I haven't! One lesson I have revisited over the past 24 hours is that it is not healthy for me to worry, fear, stress, and fret over the circumstance of my life. Most of these circumstances are silly. Does it matter if the laundry gets done, the dishes put away, or the pet hair vacuumed off of the floor? Will my work still be there tomorrow if I don't finish it all today? Yes! It will. It's not going anywhere! Do people think I am a terrible mother when I get sick and can't take care of my own children? These things may matter, but certainly aren't worth the attention and stress they are demanding from me.
In the midst of it all, may I/we learn to look at the big picture and what is REALLY important in this life. May we learn to adjust our actions/attitudes to accommodate the situation, stress, or "storms" that may surround us.
For if we are to remain calm, focused and peaceful despite our circumstances, there is no doubt that we can live in peaceful existence with any storm that comes our way! If your storm isn't being calmed, learn to accept His calm, His peace in the midst of your challenge. If and when you/WE can fully accept it, perhaps we might even find ourselves saying, "LET IT RAIN!". :)
Marcia
My words/song of comfort for the day:
"All who sail the sea of faith,
Find out before too long
How quickly blue skies can grow dark,
And gentle winds grow strong
Suddenly fear is like white water
Pounding on the soul
Still we sail on knowing
That our Lord is in control.
Sometimes He calms the storm,
With a whispered peace be still
He can settle any storm,
But it doesn't mean He will
Sometimes He holds us close
And lets the wind and waves go wild
Sometimes He calms the storm,
And other times, He calms His child.
He has a reason for each trial
That we pass through in life
And though we're shaken
We cannot be pulled apart from Christ
No matter how the driving rain beats down,
On those who hold to faith,
A heart of trust will always
Be a quiet and peaceful place."
-Kevin Stokes/Tony Wood
Monday, June 24, 2013
I'm So Alive
It's 3:00am and I can't sleep. For those who know me, you know this is not terribly uncommon. I often awaken late at night, hungry! Sometimes the nocturnal hunger comes from increasing my training volume and not getting enough calories during the day. Times like these, it's after a long stretch of being sick and not being able to eat much for days or weeks at a time.
So, I have had my snack, and need to go back to bed. However, I want to scream and shout and let it all out (yes, that's a song!) instead. I want to go for a run in the moonlight because I can. I want to feel my heart rate increase and the blood pump through my veins, because I CAN. I want to celebrate feeling GOOD again and being able to participate in LIFE for an entire day yesterday with my boys.
I know that doesn't sound like much at all, but for me it is a huge victory! It is the first day in weeks or perhaps months that I have not had to crawl back in bed during the day because my body won't function and the pain/fatigue is severe.
Seeing the sunlight through my blinds and wanting so badly to be out participating in life had become an all too familiar feeling. Having the energy today to do anything besides go to work and come right home to "crash" has been A-MAZING.
I am up at 3:00am because I want to enjoy each precious pain-free moment. It may be late/early, but my head is clear. My fingers aren't hurting as I type and I am not dizzy or nauseated. My stomach and back are NOT cramping as I type and the sharp, hot knife that has been plunging in both, has been removed.
I know better than to bank on better days ahead. All I can do is enjoy this very moment and soak in the joy of being able to participate in life again. I held my boys way too long last night and we stayed up way too late. I have no regrets and neither do they. I can't tell you how many times my 8-year-old told me he loved me yesterday and that he was so glad I was feeling better. At one point he asked me if this was a miracle that I was feeling so much better. It kills me that he has had to observe his mom being so sick for most of his life. My 4-year-old knows nothing else. It is normal for him to have a sick mom. They both know they have a mom who lives each day in chunks/blocks: sleep, activity, sleep, activity, sleep, activity, and then sleep some more.
Thank God for yesterday. I woke up, we went to worship service, lunch, and then had a FULL day at Hawaiian Falls, followed by ice cream. I did not have one dizzy spell or nausea. I was not in a daze or "trying not to pass out" at any point in time yesterday. When we came home, I had the energy to play with the boys and do their nightly routine (bath/stories). Walking up the stairs was not a nightmare yesterday and I did it multiple times without joint pain, JUST BECAUSE I COULD!
I wish I did not have to rely on modern medicine. I have tried every diet and supplement known to man to try and abate the symptoms of my Crohn's Disease. I have learned that I can do the best I can to stay strong and healthy, but much of it is beyond my control. I have learned to rely on the only one who truly knows my health and my future: My Creator.
I know not how many days on this earth I have to live but He does. He knows how many hairs are on my head and he knows how my life will play out until the end. If ever a time to praise Him for allowing me to continue living and enjoying my life it is NOW.
So at 3:00am I REJOICE in gladness and in health. Remicade may be my miracle drug for now and I will appreciate each and every moment that I can. I will not take one single moment for granted. No, I am not fighting cancer. I don't really have a chance to "beat" this nor does it have a solid "end" point. My disease is a silent killer with no cure. It wants to destroy my insides and does so with all its inflammation and power. On the outside I look no different from anyone else. To many, I am a "picture of health". Trust me when I say it's because I have trained for years and years to keep this body strong and my life depends on it. I want to maintain a strong temple that is prepared for battle at all times.
The medications I take to give me hope and life may very well cause cancer one day. They subject me to infection, other diseases, and I must be monitored closely to watch for toxic effects on my organs.
I take these risks to embrace time outside these walls. Time with my boys, my family, my lifelong friends, my new friends, my FTC athletes and Strong Women (who I adore) and my best friend/biggest cheerleader, Sean. I want more time with all of them.
For now I will resist the urge to run in the moonlight! I will at least wait a few more hours and try to get a little more sleep so I am not too tired tomorrow. :)
If you aren't enjoying each and EVERY second of your good health, I beg you to do so. It is a GIFT. I challenge you today to cherish that gift and be thankful. Have a little more patience with your children today, hug them just a little bit longer, smile at a stranger, listen to a friend, remind those close to you of how much you love them, and DANCE because you CAN! Celebrate because life is worth celebrating, and so are YOU.
So, I have had my snack, and need to go back to bed. However, I want to scream and shout and let it all out (yes, that's a song!) instead. I want to go for a run in the moonlight because I can. I want to feel my heart rate increase and the blood pump through my veins, because I CAN. I want to celebrate feeling GOOD again and being able to participate in LIFE for an entire day yesterday with my boys.
I know that doesn't sound like much at all, but for me it is a huge victory! It is the first day in weeks or perhaps months that I have not had to crawl back in bed during the day because my body won't function and the pain/fatigue is severe.
Seeing the sunlight through my blinds and wanting so badly to be out participating in life had become an all too familiar feeling. Having the energy today to do anything besides go to work and come right home to "crash" has been A-MAZING.
I am up at 3:00am because I want to enjoy each precious pain-free moment. It may be late/early, but my head is clear. My fingers aren't hurting as I type and I am not dizzy or nauseated. My stomach and back are NOT cramping as I type and the sharp, hot knife that has been plunging in both, has been removed.
I know better than to bank on better days ahead. All I can do is enjoy this very moment and soak in the joy of being able to participate in life again. I held my boys way too long last night and we stayed up way too late. I have no regrets and neither do they. I can't tell you how many times my 8-year-old told me he loved me yesterday and that he was so glad I was feeling better. At one point he asked me if this was a miracle that I was feeling so much better. It kills me that he has had to observe his mom being so sick for most of his life. My 4-year-old knows nothing else. It is normal for him to have a sick mom. They both know they have a mom who lives each day in chunks/blocks: sleep, activity, sleep, activity, sleep, activity, and then sleep some more.
Thank God for yesterday. I woke up, we went to worship service, lunch, and then had a FULL day at Hawaiian Falls, followed by ice cream. I did not have one dizzy spell or nausea. I was not in a daze or "trying not to pass out" at any point in time yesterday. When we came home, I had the energy to play with the boys and do their nightly routine (bath/stories). Walking up the stairs was not a nightmare yesterday and I did it multiple times without joint pain, JUST BECAUSE I COULD!
I wish I did not have to rely on modern medicine. I have tried every diet and supplement known to man to try and abate the symptoms of my Crohn's Disease. I have learned that I can do the best I can to stay strong and healthy, but much of it is beyond my control. I have learned to rely on the only one who truly knows my health and my future: My Creator.
I know not how many days on this earth I have to live but He does. He knows how many hairs are on my head and he knows how my life will play out until the end. If ever a time to praise Him for allowing me to continue living and enjoying my life it is NOW.
So at 3:00am I REJOICE in gladness and in health. Remicade may be my miracle drug for now and I will appreciate each and every moment that I can. I will not take one single moment for granted. No, I am not fighting cancer. I don't really have a chance to "beat" this nor does it have a solid "end" point. My disease is a silent killer with no cure. It wants to destroy my insides and does so with all its inflammation and power. On the outside I look no different from anyone else. To many, I am a "picture of health". Trust me when I say it's because I have trained for years and years to keep this body strong and my life depends on it. I want to maintain a strong temple that is prepared for battle at all times.
The medications I take to give me hope and life may very well cause cancer one day. They subject me to infection, other diseases, and I must be monitored closely to watch for toxic effects on my organs.
I take these risks to embrace time outside these walls. Time with my boys, my family, my lifelong friends, my new friends, my FTC athletes and Strong Women (who I adore) and my best friend/biggest cheerleader, Sean. I want more time with all of them.
For now I will resist the urge to run in the moonlight! I will at least wait a few more hours and try to get a little more sleep so I am not too tired tomorrow. :)
If you aren't enjoying each and EVERY second of your good health, I beg you to do so. It is a GIFT. I challenge you today to cherish that gift and be thankful. Have a little more patience with your children today, hug them just a little bit longer, smile at a stranger, listen to a friend, remind those close to you of how much you love them, and DANCE because you CAN! Celebrate because life is worth celebrating, and so are YOU.
Monday, June 17, 2013
Sliding Doors
It's that mistake you made that had consequences. It's that mistake you made that nobody knew about. It's that plane you missed, the guy/girl you "gave a chance" when you were single, or maybe it's the day you took the stairs instead of the elevator. It's the little things like that in life that simply passed you by, or did they?
Ever wonder what would have happened had you made a different choice? Ever wonder why you followed your gut on a decision? Better yet, ever wonder why you denied your gut feeling and went with something despite that nagging sensation that something wasn't quite right?
In our lives we encounter crossroads. Sliding doors is somewhat a metaphor for these crossroads. The slightest change in plans can make a huge difference in the final outcome. It can even be a matter of life or death for some.
Sometimes I wonder what my life would be like if I had chosen a different path. Perhaps I made a different decision on whom to marry, what profession to choose, or whether or not to be a mom.
I could spend hours wondering what might have transpired if my sliding door options had differed. I could spend days yearning for a different outcome, or "better" life.
However, when it boils down to it, I am happy with my life. The mistakes, choices and decisions I have made are responsible for the person I am today. I have absolutely, without a doubt, made poor decisions. We all have. I have hurt others without intention, because of my choices in life. At the same time, I also may have blessed others without even knowing it.
You see, there is not necessarily a right or wrong choice when it comes to the sliding doors in our lives. We experience life and become stronger, better people because of our choices. We have the option to "let go" of our poor decisions. We can learn from them and vow not to make the mistake again.
If we live with regret and focus on the "what might have been's" we are not TRULY living. Instead, we are wishing for something that was not in the blueprint of our lives. Pining for something that doesn't make up the "story" that has become our lives.
Don't waste another valuable minute pondering your sliding doors. The choices were made and made for a reason. If mistakes were involved, LEARN FROM THEM! Grow from your errors and do not repeat them.
Be thankful for your trials because they make you strong and mold you into the beautiful person that you are today. Smile when you think of that open door you could have taken but didn't. I guarantee you that door may have changed SOME things, but the grass isn't always greener elsewhere.
Cherish each day and have no regrets. Leave the past in the past where it belongs. Enjoy the present because that is exactly what it is: a GIFT! What you do with today matters, so choose wisely and choose to make a difference in the lives of those around you. Make them glad their sliding doors led them to YOU. :)
Ever wonder what would have happened had you made a different choice? Ever wonder why you followed your gut on a decision? Better yet, ever wonder why you denied your gut feeling and went with something despite that nagging sensation that something wasn't quite right?
In our lives we encounter crossroads. Sliding doors is somewhat a metaphor for these crossroads. The slightest change in plans can make a huge difference in the final outcome. It can even be a matter of life or death for some.
Sometimes I wonder what my life would be like if I had chosen a different path. Perhaps I made a different decision on whom to marry, what profession to choose, or whether or not to be a mom.
I could spend hours wondering what might have transpired if my sliding door options had differed. I could spend days yearning for a different outcome, or "better" life.
However, when it boils down to it, I am happy with my life. The mistakes, choices and decisions I have made are responsible for the person I am today. I have absolutely, without a doubt, made poor decisions. We all have. I have hurt others without intention, because of my choices in life. At the same time, I also may have blessed others without even knowing it.
You see, there is not necessarily a right or wrong choice when it comes to the sliding doors in our lives. We experience life and become stronger, better people because of our choices. We have the option to "let go" of our poor decisions. We can learn from them and vow not to make the mistake again.
If we live with regret and focus on the "what might have been's" we are not TRULY living. Instead, we are wishing for something that was not in the blueprint of our lives. Pining for something that doesn't make up the "story" that has become our lives.
Don't waste another valuable minute pondering your sliding doors. The choices were made and made for a reason. If mistakes were involved, LEARN FROM THEM! Grow from your errors and do not repeat them.
Be thankful for your trials because they make you strong and mold you into the beautiful person that you are today. Smile when you think of that open door you could have taken but didn't. I guarantee you that door may have changed SOME things, but the grass isn't always greener elsewhere.
Cherish each day and have no regrets. Leave the past in the past where it belongs. Enjoy the present because that is exactly what it is: a GIFT! What you do with today matters, so choose wisely and choose to make a difference in the lives of those around you. Make them glad their sliding doors led them to YOU. :)
Sunday, June 9, 2013
"If you faint in the day of adversity, your strength is small." Proverbs 24:10
I woke up this morning with a renewed fighting spirit. Despair has tried to set in as I battle once again the war that rages within me. I found my deepest darkest place earlier this week. My reflection revealed the hard cold truth of what my future holds: UNCERTAINTY is the only CERTAINTY.
That is true for each of us, but for those of us that battle chronic illness we know that there is no stability to our state of health. Each day presents some sort of challenge. It may be extreme fatigue, nausea, abdominal pain, mental fog, joint pain, diarrhea, vomiting, chills, fever, or vertigo. Those are a few of the symptoms that Crohn's disease likes to throw at me on a daily basis.
I was reminded this week that I am among the handful of many Crohn's patients that do not respond well to conventional treatment. I started with oral medications and worked my way up the chain to the big guns of IBD: the biological agents. I have now successfully failed treatment with Humira and Enbrel. Failing treatment means that my body is still in turmoil, attacking itself, wild with inflammation despite attempts to suppress it.
It's not a fun feeling at all. :) I sleep more than anyone knows or realizes. It's shameful and something you want to hide as not to be perceived as "lazy". Plans are constantly canceled, commitments are broken daily. Essentially, you feel as though you are a prisoner in your own body.
I write this NOT for sympathy but for a few simple reasons:
1.) I need to put my feelings down in writing and commit TODAY (thank you, Amy) that I will keep fighting even when it seems hopeless. Crohn's is NOT welcome in my body and I will do everything in my power to destroy it and not let it destroy me.
2.) I want to bring awareness to a silent killer that physicians still don't know how to treat at its worst. Many Crohnies will die under the guise of "infection" or from a lymphoma/cancer that was caused by the treatments that give us quality of life. Yet another case of the treatment killing us rather than the disease itself. Trust me, I would LOVE to not undergo treatment at all. I have tried to come off my biologic once before and it was not a pretty sight. For some of us, it's not an option to come off our medication unless we want a one-way ticket out of this world. :)
3.) We ALL have our struggles and none of them are more or less important than the others. Whatever your challenge is today affects you just as mine affects me. Perhaps at a different magnitude, but nonetheless, it is your battle.
So today, let's commit to fighting our battles. Whatever it is you have given up on (or almost given up on) RENEW your courage and strength TODAY. Don't stop fighting. There are many who struggle with you.
I ran today and it was a far cry from Ironman training. I ran two miles easy and will run another two later today. My new training plan is to get as strong as I can before starting Remicade and during the course of treatment stay strong, focused and determined.
Let's train together to fight our current and upcoming battles. Renew your commitment today to fight for what you believe in. For me, it's my health, family and loved ones. I can't give up. I believe God has bigger and better plans for me in this life.
I am going to post this raw and unedited so forgive my mistakes. Thanks for all those who support me on a daily basis.
Final thought:
"Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence."
-Helen Keller
Wednesday, June 5, 2013
Life Is Like 400-meter Repeats..!
Last night I hosted the FTC (Frisco Triathlon Club) speed workout at Griffin Parc track.
It was one of "those" days. I wasn't feeling my best and still get frustrated with the amount of pain and fatigue I deal with on a daily basis. Personal challenges lurked in the back of my mind and my list of things to do for the week kept creeping to the forefront of my thoughts.
I found myself distracted. Literally running in circles. Round and round the track I went. I started to find humor in it. I also began drawing parallels. Each time I rounded the track I thought of how each day of my life seemed to be redundant.
Sometimes the same old routine becomes daunting. Whether it be kids, a spouse, work or a hobby, each day can become a blur. The events run together in such a way that you feel as though you are running around and around a track. You aren't even getting anywhere and in fact, you are getting more tired with each lap.
Suddenly your steps feel heavy, your breathing gets labored and the thought of going around the track again (400m) or facing another day becomes a MOUNTAIN.
Before our speed workouts, I always used to tell my athletes to pace themselves. We start with a warm-up mile to loosen up our muscles and slowly raise the heart rate. Last night our warm-up was followed by a main set of 400m repeats x 8-10. One lap around the track = 400 meters.
During the main set we would push ourselves to the limit (lactate/anaerobic threshold) with each lap around the track. Our recovery time after each lap on this particular day was 60 seconds. That recovery time would give the body just enough of a chance to start clearing the lactic acid, and then we would run begin another lap. We flooded our systems time and again with the lovely toxic acid, teaching ourselves to tolerate it at higher levels. As a result over time, we learn to process it more efficiently and can tolerate higher levels of exertion with less fatigue. We become faster and stronger. More efficient.
The key to finishing 8-10 400-meter repeats at threshold, is to pace yourself. If you start out too fast, you are sure to tire, making it tough to complete the entire main set.
Over the course of the 8-10 laps, you also want to be consistent. It would do the athlete no good to jog an easy lap as part of a speed work out plan. One needs to push themselves to threshold in order to see growth and results.
The recovery minute is key. If you take too long a recovery, you will not achieve maximum results. You want repetition of the lactic acid flood, at certain intervals, and with only a certain degree of recovery in between. You must stay focused and disciplined in order to have a successful speed training session.
So last night as I ran my 400's, I began to think of my life as one big track. I ask you to do the same today. Do you blast through each day at a high speed? Are you eager to take on anything and everything with no limits? Do you find yourself overwhelmed and before you know it, burned out?
Surely if you do not pace yourself, your days become a very tough set of 400's. By number 4/10 you will be fatigued. You will find that you have overextended yourself. The duration of your workout will seem impossible to achieve. You will likely become overwhelmed, easily irritated and sometimes even feel like a failure.
Or perhaps you have the opposite problem: Perhaps you are not giving each day your ALL. Maybe you JOG the first 8/10 of your 400m repeats. You play it safe and save your energy for the last couple of laps. Very little (if anything) changes as you make your way through each lap/day. You give only a small percentage of what you are actually capable. You are saving "the best for last".
But what if you NEVER get the chance to run those last few laps? You are doing yourself a disservice by failing to give your all. You are also failing those around you who could benefit from your talents and gifts. And yes, you DO have talents and gifts that are worth sharing! Don't waste them!
The best way to tackle a set of 400's, my friends, is to BE CONSISTENT. Give your best to each lap or each day. Pace yourselves, but do not withhold your time, energy and talents. You want to finish and you want to FINISH STRONG.
You also want to make sure you take that important recovery in between laps. You need that bit of rest time before starting all over again. Before you fill your system again with all a new day has to offer you, REST. Be still and RECOVER.
Like a good speed workout, come right back out on cue, ready to go. Get after your next lap! Each one is tackled with a new sense of strength and power. You begin to crave giving your BEST and your ALL because THAT is what we are called to do. We are not called to live mediocre lives. We are called to learn each day how to be better individuals, gain strength from our experiences, and move forward with power and knowledge.
One of the greatest feelings EVER is knowing that you did your best, gave what you had to give, and became stronger and more powerful from your experience!
How are you running your main set?
It was one of "those" days. I wasn't feeling my best and still get frustrated with the amount of pain and fatigue I deal with on a daily basis. Personal challenges lurked in the back of my mind and my list of things to do for the week kept creeping to the forefront of my thoughts.
I found myself distracted. Literally running in circles. Round and round the track I went. I started to find humor in it. I also began drawing parallels. Each time I rounded the track I thought of how each day of my life seemed to be redundant.
Sometimes the same old routine becomes daunting. Whether it be kids, a spouse, work or a hobby, each day can become a blur. The events run together in such a way that you feel as though you are running around and around a track. You aren't even getting anywhere and in fact, you are getting more tired with each lap.
Suddenly your steps feel heavy, your breathing gets labored and the thought of going around the track again (400m) or facing another day becomes a MOUNTAIN.
Before our speed workouts, I always used to tell my athletes to pace themselves. We start with a warm-up mile to loosen up our muscles and slowly raise the heart rate. Last night our warm-up was followed by a main set of 400m repeats x 8-10. One lap around the track = 400 meters.
During the main set we would push ourselves to the limit (lactate/anaerobic threshold) with each lap around the track. Our recovery time after each lap on this particular day was 60 seconds. That recovery time would give the body just enough of a chance to start clearing the lactic acid, and then we would run begin another lap. We flooded our systems time and again with the lovely toxic acid, teaching ourselves to tolerate it at higher levels. As a result over time, we learn to process it more efficiently and can tolerate higher levels of exertion with less fatigue. We become faster and stronger. More efficient.
The key to finishing 8-10 400-meter repeats at threshold, is to pace yourself. If you start out too fast, you are sure to tire, making it tough to complete the entire main set.
Over the course of the 8-10 laps, you also want to be consistent. It would do the athlete no good to jog an easy lap as part of a speed work out plan. One needs to push themselves to threshold in order to see growth and results.
The recovery minute is key. If you take too long a recovery, you will not achieve maximum results. You want repetition of the lactic acid flood, at certain intervals, and with only a certain degree of recovery in between. You must stay focused and disciplined in order to have a successful speed training session.
So last night as I ran my 400's, I began to think of my life as one big track. I ask you to do the same today. Do you blast through each day at a high speed? Are you eager to take on anything and everything with no limits? Do you find yourself overwhelmed and before you know it, burned out?
Surely if you do not pace yourself, your days become a very tough set of 400's. By number 4/10 you will be fatigued. You will find that you have overextended yourself. The duration of your workout will seem impossible to achieve. You will likely become overwhelmed, easily irritated and sometimes even feel like a failure.
Or perhaps you have the opposite problem: Perhaps you are not giving each day your ALL. Maybe you JOG the first 8/10 of your 400m repeats. You play it safe and save your energy for the last couple of laps. Very little (if anything) changes as you make your way through each lap/day. You give only a small percentage of what you are actually capable. You are saving "the best for last".
But what if you NEVER get the chance to run those last few laps? You are doing yourself a disservice by failing to give your all. You are also failing those around you who could benefit from your talents and gifts. And yes, you DO have talents and gifts that are worth sharing! Don't waste them!
The best way to tackle a set of 400's, my friends, is to BE CONSISTENT. Give your best to each lap or each day. Pace yourselves, but do not withhold your time, energy and talents. You want to finish and you want to FINISH STRONG.
You also want to make sure you take that important recovery in between laps. You need that bit of rest time before starting all over again. Before you fill your system again with all a new day has to offer you, REST. Be still and RECOVER.
Like a good speed workout, come right back out on cue, ready to go. Get after your next lap! Each one is tackled with a new sense of strength and power. You begin to crave giving your BEST and your ALL because THAT is what we are called to do. We are not called to live mediocre lives. We are called to learn each day how to be better individuals, gain strength from our experiences, and move forward with power and knowledge.
One of the greatest feelings EVER is knowing that you did your best, gave what you had to give, and became stronger and more powerful from your experience!
How are you running your main set?
Monday, May 27, 2013
Scars and Stripes
After some encouragement from friends, I decided to start blogging again. I initiated the blog, "IronCrohnie" shortly after being diagnosed with Crohn's Disease at the beginning of 2010 and enjoyed recounting my whirlwind encounters with the disease along with my endurance training.
It's been way too long since I've blogged and hopefully I will find the time now to begin again. I find writing to be extremely therapeutic. Perhaps it's a way to release and organize the thoughts that scurry through my mind or maybe just to capture a particular moment in time with unedited emotion.
In any case, it was fun to read back over my blogs from two years ago.
Many things have changed since then and while I didn't journal my thoughts and emotions during that time frame, there were many lessons learned. I am still plagued with Crohn's Disease and not a day goes by when I am not reminded that I have a chronic illness. I am still stubborn, still love competing in triathlons, and still trying to live life to its fullest. I am also currently in the process of becoming an advocate for Crohn's Disease. I hope to do so on a national level to raise awareness for an incurable cause that I believe is neglected and misunderstood. The challenges patients with Crohn's Disease face on a daily basis is rarely discussed nor recognized.
I firmly believe that with each challenge we face, we become stronger. Along with these challenges, emotional scars may develop over time.
What is a scar anyway? Merriam-Webster defines a scar as a "mark left by injured tissue" and "a mark or indentation resulting from damage or wear."
I saw a sign that I liked and I posted to my Facebook profile. It was written regarding Crohn's Disease Awareness. The sign states: "Never be ashamed of a scar. It simply means you were stronger than whatever tried to hurt you."
I've been forced recently to look more closely at some of my own scars. Both physical and emotional scars.
When a physical injury occurs, fibrous tissue builds up in its place to repair the wound. This new fibrous tissue becomes strong over time. It's tougher than the old tissue. It is more firm, less delicate, less likely to be penetrated but it's certainly not the same skin/tissue that was there before. It's new and it's different.
Some people attempt to hide their scars. They buy the latest/greatest skin creams and get treatments in hopes to erase these physical scars. Scars are perceived by many as "ugly" or by others, "battle wounds".
Scars are usually considered undesirable, but why should they be? They tell a story.
Emotional scars, like physical scars, cause the human soul to develop a tough fibrous covering. Protection from what hurt them. These coverings have a memory of their own and painful memories can be activated or triggered by certain actions or events. Over time the new covering becomes so tough and so thick that it's difficult to get back to the fresh tissue or soul. It's difficult to get back to the raw essence of who we are and what caused us to "build up the wall" in the first place.
But like physical scars, the "fibrous tissue" of emotional scars starts off very fragile and sensitive. Over time, it toughens up and begins to callous. What we do with these new scars and how we allow them to affect or define us is now in our hands.
We may suddenly feel less delicate as our hearts harden, less likely to allow others to penetrate through the wall we have built to protect ourselves, and even feel "ugly" or less desirable to others.
It's time to change our way of thinking about scars. We earn our "scars" as we climb the ranks in this life. We receive our own "stripes" in life as we tackle and conquer our goals and dreams while progressing through life. It's time to consider our scars as a part of who we are and what makes us stronger individuals.
What brought us where we are today and makes us WHO we are has likely included many a scar and many a stripe.
May we wear them proudly because it means we are stronger than whatever it was that tried to hurt us!
Examine your scars today. How have they healed or how are they healing? Do you try to cover them with expensive treatments or rid them with other remedies? Are your scars keeping you from doing what you want to do with your life?
Do you find yourself thinking you are unworthy of success? Unworthy of love?
If so, take a second look at your scars. See the BEAUTY that lies within them. See the magical way that layer after layer has lined up to patch a worn, damaged wound. Look at the miraculous way that we were made/designed to develop new fibrous coverings or SCARS to heal our wounds. That new skin comes back stronger for a reason. It comes back thicker and more resilient for a reason.
That reason is WHO YOU ARE TODAY. You are constantly being molded and shaped into an irreplaceable, amazing, unique MASTERPIECE.
Find the beauty in your scars, both physical and emotional. Take time to nurture yourself and your inner spirit. Learn from your mistakes. Don't make the same mistake twice. Be the best that you can be every day from the minute you wake up to the minute you go to bed. Look in the mirror and love yourself, "scars and stripes" included! :) You have earned them.
It's been way too long since I've blogged and hopefully I will find the time now to begin again. I find writing to be extremely therapeutic. Perhaps it's a way to release and organize the thoughts that scurry through my mind or maybe just to capture a particular moment in time with unedited emotion.
In any case, it was fun to read back over my blogs from two years ago.
Many things have changed since then and while I didn't journal my thoughts and emotions during that time frame, there were many lessons learned. I am still plagued with Crohn's Disease and not a day goes by when I am not reminded that I have a chronic illness. I am still stubborn, still love competing in triathlons, and still trying to live life to its fullest. I am also currently in the process of becoming an advocate for Crohn's Disease. I hope to do so on a national level to raise awareness for an incurable cause that I believe is neglected and misunderstood. The challenges patients with Crohn's Disease face on a daily basis is rarely discussed nor recognized.
I firmly believe that with each challenge we face, we become stronger. Along with these challenges, emotional scars may develop over time.
What is a scar anyway? Merriam-Webster defines a scar as a "mark left by injured tissue" and "a mark or indentation resulting from damage or wear."
I saw a sign that I liked and I posted to my Facebook profile. It was written regarding Crohn's Disease Awareness. The sign states: "Never be ashamed of a scar. It simply means you were stronger than whatever tried to hurt you."
I've been forced recently to look more closely at some of my own scars. Both physical and emotional scars.
When a physical injury occurs, fibrous tissue builds up in its place to repair the wound. This new fibrous tissue becomes strong over time. It's tougher than the old tissue. It is more firm, less delicate, less likely to be penetrated but it's certainly not the same skin/tissue that was there before. It's new and it's different.
Some people attempt to hide their scars. They buy the latest/greatest skin creams and get treatments in hopes to erase these physical scars. Scars are perceived by many as "ugly" or by others, "battle wounds".
Scars are usually considered undesirable, but why should they be? They tell a story.
Emotional scars, like physical scars, cause the human soul to develop a tough fibrous covering. Protection from what hurt them. These coverings have a memory of their own and painful memories can be activated or triggered by certain actions or events. Over time the new covering becomes so tough and so thick that it's difficult to get back to the fresh tissue or soul. It's difficult to get back to the raw essence of who we are and what caused us to "build up the wall" in the first place.
But like physical scars, the "fibrous tissue" of emotional scars starts off very fragile and sensitive. Over time, it toughens up and begins to callous. What we do with these new scars and how we allow them to affect or define us is now in our hands.
We may suddenly feel less delicate as our hearts harden, less likely to allow others to penetrate through the wall we have built to protect ourselves, and even feel "ugly" or less desirable to others.
It's time to change our way of thinking about scars. We earn our "scars" as we climb the ranks in this life. We receive our own "stripes" in life as we tackle and conquer our goals and dreams while progressing through life. It's time to consider our scars as a part of who we are and what makes us stronger individuals.
What brought us where we are today and makes us WHO we are has likely included many a scar and many a stripe.
May we wear them proudly because it means we are stronger than whatever it was that tried to hurt us!
Examine your scars today. How have they healed or how are they healing? Do you try to cover them with expensive treatments or rid them with other remedies? Are your scars keeping you from doing what you want to do with your life?
Do you find yourself thinking you are unworthy of success? Unworthy of love?
If so, take a second look at your scars. See the BEAUTY that lies within them. See the magical way that layer after layer has lined up to patch a worn, damaged wound. Look at the miraculous way that we were made/designed to develop new fibrous coverings or SCARS to heal our wounds. That new skin comes back stronger for a reason. It comes back thicker and more resilient for a reason.
That reason is WHO YOU ARE TODAY. You are constantly being molded and shaped into an irreplaceable, amazing, unique MASTERPIECE.
Find the beauty in your scars, both physical and emotional. Take time to nurture yourself and your inner spirit. Learn from your mistakes. Don't make the same mistake twice. Be the best that you can be every day from the minute you wake up to the minute you go to bed. Look in the mirror and love yourself, "scars and stripes" included! :) You have earned them.
Thursday, March 24, 2011
Back To Reality...
It's been awhile since I have written. Actually, I just checked and it has been a full month since my last post. During the past few weeks, I have been faced once again with the reality of living with a chronic disease. Most of the time, I tend to live in a blissful state of denial: I am not sick. I am too healthy to be sick. :)
Crohn's Disease can fool the best of us. Or should I say, the best of "you"? We appear healthy on the outside. Athletes, business men/women, active moms, dads, we has no "stereotypical" look. Oh wait-sometimes we do. When an intestinal flare occurs, if it is bad enough, we lose lots of weight, look really sick and pale. Then the doctors hit us hard with steroids to decrease the battle going on inside of our guts. The Prednisone has evil side effects (mood swings, facial hair, hair loss, acne), but my favorite is the big round "moon face" that we get. Some Crohnie's gain 15-20 pounds while on Prednisone for just a few months.
In any case, I don't look sick to most of those close to me. Most people would never guess that I have a chronic illness that will shorten my life. I like to keep it that way! :)
My last posts were full of good reports. I was feeling WONDERFUL and couldn't believe it. I enjoyed every bit of feeling great while it lasted. Unfortunately, things have changed. The joint pain that came on after my September surgery, has come back with a vengeance. Increasing my 6-MP kept it under control for a couple of glorious months. About a month ago, it came back. Each day it got progressively worse. I realized that I was having trouble once again opening bottles and writing. Sleeping has become difficult again because any joint that I lay on starts hurting and awakens me. The first steps out of bed or out of a chair feel like my feet and ankles are going to break in half. I could go on, but I won't. Let's just say most of the time I feel like I have the flu, along with the joint pain that accompanies it.
Recurring or new symptoms always mean more tests!
My GI physicians (I now have two of them) were on a mission to see if they were missing some active Crohn's in my intestines. This would "make sense" of my recurrent joint pain. First step, was a Wireless Capsule Endoscopy (camera pill). Before ingesting the horse pill, I had to drink a bottle of magnesium citrate. This part of the prep did not go so well for me. It landed us in the emergency room for a very long night of more tests/scans. My belly blew up and I looked about 7 months pregnant. The nurses laughed at me because they said I was so "tiny" yet looked like I was about to "pop".
I struggled through the rest of the prep and was deemed safe to proceed with the endoscopy. After a long and miserable few days, the test was complete. The results, however, were inconclusive. GI Number Two decided that an additional test was necessary because he could not see enough of the small intestine. So, as soon as I was recovered from the first test, I found myself (once again) in the hospital for several hours, prepping for a second procedure/test. Once again, my body did not do well with the test prep. Perhaps it was the 3 bottles of contrast I was required to drink! Three days of pain, nausea, and abdominal distention LATER...the doctor called with the "good news". After being almost certain I had another stricture in my intestines, the tests were all negative, reflecting that there was NO active Crohn's disease in the intestines.
Awesome news (ahem), but what about the fact that I am still gimping around like an 80-year-old woman? Second trip to the rheumatologist comes into play. The doctors have their pow-wow, and decide that it is time to bring out the "big guns" in the treatment of my Crohn's Disease.
Next week, I begin the biological agent called Humira. I will give myself injections every other week. This drug is a Tumor Necrosis Factor inhibitor. It will block my body's production of TNF that is causing all of this extraordinary inflammation.
If you want a good scare, just read the list of side effects for Humira! It is not something that you want to jump straight into without some good thought. However, we have now exhausted just about every other option. Yes, I have tried diet modification, herbs, and even acupuncture in the past. I have tried (and failed) the traditional oral medications for my condition. And no, Tylenol and/or Advil do not work. Not even close. Plus, Chronie's can't take anti-inflammatories. Oh, and prescription pain killers will take the edge off the pain, but wreak havoc on the rest of your system. They are a "no-go" for me.
With an auto-immune disorder, you must tackle the root of the problem or the side effects will not cease. For me, this means suppressing a whacked out immune system that perceives good things as foreign and goes into attack mode. I guess after my diseased intestine was removed, Mr. Crohn's moved on to bigger and better things: my joints. :)
And so, we embark upon a new adventure with biologics next week. It is not a decision that was taken lightly. Trust me!! If I could ditch all my medications and go the holistic route, I WOULD. However, that route would likely send me to my grave much, much sooner. Therefore, I rely on modern medicine. Modern medicine and prayer. I don't pray for a cure or for healing. That is not how I pray. The God to whom I pray has a grand plan for each of us. HE knows what HE is doing. Sometimes healing and/or "cures" are not in His plan. That doesn't mean I am not worthy of healing, or that I don't hope for relief. Of course I do. I am very strong and very stubborn. Not many things stop me from doing what I want to do in this life. I can still cycle 80 miles when I want to and if I am having a "good" joint day. As long as my joints stay in motion, they are happy. In fact, I am encouraged to exercise every day. But for me, it is getting harder to WANT to, because of the pain. If you know me at all, you KNOW that is a huge problem. :)
What I do pray for is peace on this journey. May I do what I am meant to do in this life and in the short time I am here. None of us are promised another day. May I always encourage others to give their best and not to give up when the going gets rough. I also struggle with feeling like a burden to my family and friends. I have the most wonderful husband who takes over more than his share at times when I literally cannot move. My friends and athletes are also the BEST. But I want to SEE them more, and feel well enough again to get out with them and take their calls in a more timely fashion. I want to be able to play actively with my boys again, and not dread even going up the stairs to their rooms!
Lots of things still left to do. Lots of love to give, goals to reach, dreams to build.
So for now...it is "back to reality" for me and Mr. Crohn's. But next week, the new fight begins. New treatment will start and you can believe that my will to get better is even stronger than ever. Look out! You should know by now....I. DON'T. GIVE. UP! :)
Crohn's Disease can fool the best of us. Or should I say, the best of "you"? We appear healthy on the outside. Athletes, business men/women, active moms, dads, we has no "stereotypical" look. Oh wait-sometimes we do. When an intestinal flare occurs, if it is bad enough, we lose lots of weight, look really sick and pale. Then the doctors hit us hard with steroids to decrease the battle going on inside of our guts. The Prednisone has evil side effects (mood swings, facial hair, hair loss, acne), but my favorite is the big round "moon face" that we get. Some Crohnie's gain 15-20 pounds while on Prednisone for just a few months.
In any case, I don't look sick to most of those close to me. Most people would never guess that I have a chronic illness that will shorten my life. I like to keep it that way! :)
My last posts were full of good reports. I was feeling WONDERFUL and couldn't believe it. I enjoyed every bit of feeling great while it lasted. Unfortunately, things have changed. The joint pain that came on after my September surgery, has come back with a vengeance. Increasing my 6-MP kept it under control for a couple of glorious months. About a month ago, it came back. Each day it got progressively worse. I realized that I was having trouble once again opening bottles and writing. Sleeping has become difficult again because any joint that I lay on starts hurting and awakens me. The first steps out of bed or out of a chair feel like my feet and ankles are going to break in half. I could go on, but I won't. Let's just say most of the time I feel like I have the flu, along with the joint pain that accompanies it.
Recurring or new symptoms always mean more tests!
My GI physicians (I now have two of them) were on a mission to see if they were missing some active Crohn's in my intestines. This would "make sense" of my recurrent joint pain. First step, was a Wireless Capsule Endoscopy (camera pill). Before ingesting the horse pill, I had to drink a bottle of magnesium citrate. This part of the prep did not go so well for me. It landed us in the emergency room for a very long night of more tests/scans. My belly blew up and I looked about 7 months pregnant. The nurses laughed at me because they said I was so "tiny" yet looked like I was about to "pop".
I struggled through the rest of the prep and was deemed safe to proceed with the endoscopy. After a long and miserable few days, the test was complete. The results, however, were inconclusive. GI Number Two decided that an additional test was necessary because he could not see enough of the small intestine. So, as soon as I was recovered from the first test, I found myself (once again) in the hospital for several hours, prepping for a second procedure/test. Once again, my body did not do well with the test prep. Perhaps it was the 3 bottles of contrast I was required to drink! Three days of pain, nausea, and abdominal distention LATER...the doctor called with the "good news". After being almost certain I had another stricture in my intestines, the tests were all negative, reflecting that there was NO active Crohn's disease in the intestines.
Awesome news (ahem), but what about the fact that I am still gimping around like an 80-year-old woman? Second trip to the rheumatologist comes into play. The doctors have their pow-wow, and decide that it is time to bring out the "big guns" in the treatment of my Crohn's Disease.
Next week, I begin the biological agent called Humira. I will give myself injections every other week. This drug is a Tumor Necrosis Factor inhibitor. It will block my body's production of TNF that is causing all of this extraordinary inflammation.
If you want a good scare, just read the list of side effects for Humira! It is not something that you want to jump straight into without some good thought. However, we have now exhausted just about every other option. Yes, I have tried diet modification, herbs, and even acupuncture in the past. I have tried (and failed) the traditional oral medications for my condition. And no, Tylenol and/or Advil do not work. Not even close. Plus, Chronie's can't take anti-inflammatories. Oh, and prescription pain killers will take the edge off the pain, but wreak havoc on the rest of your system. They are a "no-go" for me.
With an auto-immune disorder, you must tackle the root of the problem or the side effects will not cease. For me, this means suppressing a whacked out immune system that perceives good things as foreign and goes into attack mode. I guess after my diseased intestine was removed, Mr. Crohn's moved on to bigger and better things: my joints. :)
And so, we embark upon a new adventure with biologics next week. It is not a decision that was taken lightly. Trust me!! If I could ditch all my medications and go the holistic route, I WOULD. However, that route would likely send me to my grave much, much sooner. Therefore, I rely on modern medicine. Modern medicine and prayer. I don't pray for a cure or for healing. That is not how I pray. The God to whom I pray has a grand plan for each of us. HE knows what HE is doing. Sometimes healing and/or "cures" are not in His plan. That doesn't mean I am not worthy of healing, or that I don't hope for relief. Of course I do. I am very strong and very stubborn. Not many things stop me from doing what I want to do in this life. I can still cycle 80 miles when I want to and if I am having a "good" joint day. As long as my joints stay in motion, they are happy. In fact, I am encouraged to exercise every day. But for me, it is getting harder to WANT to, because of the pain. If you know me at all, you KNOW that is a huge problem. :)
What I do pray for is peace on this journey. May I do what I am meant to do in this life and in the short time I am here. None of us are promised another day. May I always encourage others to give their best and not to give up when the going gets rough. I also struggle with feeling like a burden to my family and friends. I have the most wonderful husband who takes over more than his share at times when I literally cannot move. My friends and athletes are also the BEST. But I want to SEE them more, and feel well enough again to get out with them and take their calls in a more timely fashion. I want to be able to play actively with my boys again, and not dread even going up the stairs to their rooms!
Lots of things still left to do. Lots of love to give, goals to reach, dreams to build.
So for now...it is "back to reality" for me and Mr. Crohn's. But next week, the new fight begins. New treatment will start and you can believe that my will to get better is even stronger than ever. Look out! You should know by now....I. DON'T. GIVE. UP! :)
Friday, January 28, 2011
"I Get By With A Little Help From My Friends...."
Most of us have friends. There are "friends" and there are FRIENDS. Know what I mean? Besties, BFF's, soul sister/bro, whatever you want to call them. They are the ones that are always there for you. When you find yourself in the darkest of hours, a FRIEND will grab your hand and guide you back to the light.
I have been blessed beyond measure to have amazing girlfriends. You know who you are, and you know that I don't know where I would be without you. I want to thank you from the bottom of my heart for always loving me, and taking the time to listen or show that you care.
This past year was a difficult one. Being diagnosed with a chronic illness "rained on my parade" of life. But during that rain, I had some pretty hefty "umbrellas". My FRIENDS. They covered me and protected me when I needed it most. At times, I found myself literally standing in the pouring rain. Overwhelmed with life, I made mistakes that should have never been made. Yet my "umbrellas" came to the rescue. They never fail, they never "break" and I wouldn't "return" them for anything in the world.
They are selfless, giving, patient and kind. I only hope I can show them half of the love they have shown to me.
Last year, three of my best friends flew all the way to Utah just to see me attempt my first Ironman. After learning that my parents would not be able to make the trip, they decided they would go and be my support. They helped my husband with the kids, and helped me survive the week leading up to the event.
The night before the event, they decorated our rental house with streamers, balloons, and signs. They shoe-polished our rental cars. "You can do it, Marcia!" and "Marcia is our Ironwoman". Of course, my favorite, "FINISH STRONG".
On race day, they got up before the sun came up just to see me off for the day. Then, they began their own "Ironman" day. What a long day for them as they chased my kids around, found me along parts of the routes, held up their homemade signs.
Just knowing they were there for me, was HUGE. They believed in me, no matter what. They were proud of me whether I finished or not. There was one point during the 15-hour-day that I did not know if I would finish the race. I was in so much pain from the intestinal stricture, that I was doubled over and miserable. My friends and family were worried. I had worked this hard, and they wanted to see me finish. One of my best friends, Kathy Dann, is a fellow triathlete and runner. Kathy had endured her own set of problems that spring. She had just recovered from a fractured ankle/foot.
I can't tell you how touched I was when I looked over and saw Kathy running alongside the course by me on the marathon. She didn't say a word. She just ran silently. There was a look of concern on her face. She knew I was hurting and I could tell by the look on her face, that she was hurting for ME. I would disappear into the hills and obscured areas for a mile or two on the course, and then come back
out on the main road. Every time I came back out, Kathy was there waiting to run silently beside me. Just knowing she was there, made me feel encouraged and strong.
FRIENDS. That's what they do. They lift us up when we need it most. They sacrifice things in their lives to help us get through tough times. I feel as though my poor friends got more than they bargained for with me! Accidents, surgeries, traumas, Crohn's Disease, my friends have never left my side.
I am blessed to have had two of these girls in my life since I was 9 years old. Wow! That is a LONG time. These girls are my sisters. They have stepped in over the years and been closer than family. Emergency hospitalization and surgery in September, brought all of these girls to my side. What my husband and I would have done without them that first few days, I have no clue. They took over my care, the care of my kids, and ran my household until my family could get to town.
My FRIENDS, are my "umbrellas" and also my angels. I am extremely thankful to have such strong women in my life.
They also challenge me to step up my game. I want to make sure that I would do the same for them, or someone else in need. Sometimes we get the biggest blessing from helping others, but first we must take the time to give of ourselves. Let go of our pride and judgement and see other people for who they are. Accept all of their flaws and continue to love them. Knowing that none of us are perfect and that we all fall short sometimes.
I challenge you to take the opportunity to truly thank the strong, positive people in your life. You wouldn't be where you are today without them. I also challenge you to BE the kind of friend that you would like to have. Go that extra mile, break out of your comfort zone, take that risk. It will not go without notice or without appreciation.
Giving of yourself and your time to be a FRIEND, and not just a "friend" is one of the best things you can do for yourself and others.
Thank you, Esther, Jamie, and Kathy. You are my FRIENDS (along with so many more). Without you three as my "umbrellas" this past year, I would literally be soaked! :)
Tuesday, January 25, 2011
Let The Good Times Roll.....
This last couple of weeks has been pretty amazing. Since my 6-MP (oral chemotherapy for my Crohn's Disease) was increased, my joint pain has significantly improved. My energy level is also better than it has been in years. Some days I think I am just dreaming that I really feel THIS good. In fact, it feels "too good to be true". I have not had this many "good" days in years. Even a recent bout with strep throat only knocked me down for a few days. Months ago, that would have been about a two-week set back for me.
So overall, life is REALLY good here. I have more energy to spend quality time with my family. I absolutely love being able to spend more time with my boys and less time sick in bed. Spending the days playing with them instead of doubled over in pain or fighting nausea and flu symptoms, is a welcomed change.
Physically, I have recovered 100% from major surgery in September. My fitness level is currently exceeding my expectations and I feel better than ever. I am cautiously training for my second Ironman in May. I will let my health be a guide as to how much I can push and whether or not I will go that distance. I am enjoying training and absolutely love my work as a fitness instructor, personal trainer, and coach.
I have finally had the energy to put back into my coaching business, "Finish Strong". I have branched out to accommodate body fat composition testing and personal fitness consultations in addition to triathlon coaching. I absolutely LOVE helping people reach their fitness goals.
So why is it that even though life is going SUPER right now, I still feel like I am walking on eggshells? Why do I feel like any moment the dreaded fatigue and pain is going to come back with a vengeance? I am still hesitant to plan too far out in the future. I am just starting to trust myself again and that I am able to fulfill commitments or appointments. The good days have outnumbered the bad now for 6 weeks. Will my streak of good health end soon?
I keep telling myself this time is different. Last year at this time, I was living (unaware) that eight inches of my intestines were destroyed from Crohn's. Essentially, that equates to walking around with a partially dead gut. Pretty gross if you think about it. I would have horrible bouts of nausea, dizziness, abdominal pain and fatigue. I was on all the right medications, but they were not helping because the diseased intestine was scarred beyond repair. There was days I would literally lay flat on the floor and not be able to move until my husband brought me a cocktail of medicine. Thank God, we have not seen any of those days since my surgery.
In fact, at that time I was only able to eat certain foods. I called them the "foods within my box" to my friends. I lived on wheat bagels with peanut butter and honey. I could eat sweets and starches because they were easy to digest. All of the healthy things like fruits and vegetables were out of the question. My body views those things as "foreign" and starts attacking the lining of my gut. I now drink daily protein shakes with an addition of "super greens" to fulfill my nutritional needs.
Meats were also out of the question. Now we know why...when you have a damaged, flat intestine the opening is about the size of the eye of a needle. Food just isn't going to pass.
Come to find out, that is the reason why I struggled during my very first Ironman in Utah, last May. I was very prepared for the race and the distances were not a problem. I had assumed that my issues were due to the fact that I lost some of my medication during the beginning of the bike ride. I now know that the bagel I ate in T1 (after swallowing lots of air while swimming out in the frigid water), was going to give me hours of trouble over the course of a 15-hour event because of the severe stricture in my ileum. In fact, I would spend hours on the bike barely able to maintain aero position because of pain. My abdomen appeared as though I was 5 months pregnant. Forcing down food was not even an option.
I was fortunate to make it through the race, since nutrition was a big issue for me. I survived on Cytomax and easily digested foods like pretzels, chips, and Gu chomps. The scenery during the race was absolutely amazing. Utah is a beautiful state. I spent much time on the bike reflecting on the cards I had been dealt the past few months before the race. Not many patients newly diagnosed with Crohn's Disease are able to attempt an Ironman event. My physicians both said, "it just doesn't happen". My family physician and friend later confided in me that he did not think I would be able to do it.
I knew this was a chance of a lifetime for me, and I savored every moment, despite the pain. I learned a lot about myself that day. I learned just how strong I really was, both physically and mentally. I listened to my body and despite the abdominal pain, my vital signs were stable and I felt great. I had a physician called to meet me in T2 for evaluation to ensure that it was safe for me to continue the marathon. We both agreed that while it was likely my Crohn's acting up, my heart rate was perfect, and I was hydrated well. I continued on and finished the race feeling strong. I was disappointed that I was way off my training pace, but numerous stops from the pain and meeting with a physician, took time.
So, if we flash forward a year later, I am in training again. I never thought I would do another Ironman, but I am on track to complete number two in May.
I am at home in the water, on my bike, and on a long run. I feel absolutely no stress, just peace. My heart rate is constantly monitored and I "listen" for any aches and pains. I love to feel each muscle working to propel me forward. With each breath, I am just thankful to be alive and doing something I enjoy so much.
I will never forget what one of my close friends told me. She said, "Marcia, you are MADE for this. You ARE an Ironwoman. Your life has been one big Ironman event and you have always been prepared to do this. You were born to do this."
Sounds crazy, but she was right. Through every major challenge in my life, exercise has brought me through to the other side, stronger than ever. My faith in God and the realization that He has given me strength to do all things, comes second nature to me.
I don't know what lies ahead. I will always have Crohn's Disease and it can sneak up on me at any moment. I will have more tests later this month to ensure that there is no current hidden damage in my intestines. I will also follow-up for a possible small abdominal hernia. It may require surgery, but I am not going to let myself worry about that until I am told it is an issue.
I plan on being at the start line of Ironman Texas on May 21st in The Woodlands, if the good Lord allows me. Along with 2000 other athletes, I will attempt to once again swim 2.4 miles, bike 112 miles, and run 26.2 miles.
It might sound crazy to some, but for me, it is a comforting thought to know that my body is still strong. I am constantly in training to fight this disease. My chances are better if I am in phenomenal physical and emotional shape. For me, this means endurance training. It's deeply engrained in my heart and soul. I know that some of you will never understand this, and that is okay. For the worriers out there, I promise to continue listening to my body.
But I WON'T keep "walking on eggshells". I WILL keep doing the things I love so that I can be a better wife, mother, friend, nurse, and coach.
For now, I will enjoy this mountain top, and try not to worry about what the future might hold.
I will enjoy TODAY and the good health and energy I have. I will make the best of each moment with my children and my family.
Are you currently on a mountain top, but afraid to enjoy each moment out of fear that something bad is sure to come? Does it seem like any time you come upon good times, rough times are sure to follow? Are you constantly holding your breath to see what comes next?
Let's remind one another not to forget to ENJOY our mountain tops. Savor each moment and seize the day. We should not worry about tomorrow, as it only interferes with our ability to cherish today.
"Let the good times roll...."
So overall, life is REALLY good here. I have more energy to spend quality time with my family. I absolutely love being able to spend more time with my boys and less time sick in bed. Spending the days playing with them instead of doubled over in pain or fighting nausea and flu symptoms, is a welcomed change.
Physically, I have recovered 100% from major surgery in September. My fitness level is currently exceeding my expectations and I feel better than ever. I am cautiously training for my second Ironman in May. I will let my health be a guide as to how much I can push and whether or not I will go that distance. I am enjoying training and absolutely love my work as a fitness instructor, personal trainer, and coach.
I have finally had the energy to put back into my coaching business, "Finish Strong". I have branched out to accommodate body fat composition testing and personal fitness consultations in addition to triathlon coaching. I absolutely LOVE helping people reach their fitness goals.
So why is it that even though life is going SUPER right now, I still feel like I am walking on eggshells? Why do I feel like any moment the dreaded fatigue and pain is going to come back with a vengeance? I am still hesitant to plan too far out in the future. I am just starting to trust myself again and that I am able to fulfill commitments or appointments. The good days have outnumbered the bad now for 6 weeks. Will my streak of good health end soon?
I keep telling myself this time is different. Last year at this time, I was living (unaware) that eight inches of my intestines were destroyed from Crohn's. Essentially, that equates to walking around with a partially dead gut. Pretty gross if you think about it. I would have horrible bouts of nausea, dizziness, abdominal pain and fatigue. I was on all the right medications, but they were not helping because the diseased intestine was scarred beyond repair. There was days I would literally lay flat on the floor and not be able to move until my husband brought me a cocktail of medicine. Thank God, we have not seen any of those days since my surgery.
In fact, at that time I was only able to eat certain foods. I called them the "foods within my box" to my friends. I lived on wheat bagels with peanut butter and honey. I could eat sweets and starches because they were easy to digest. All of the healthy things like fruits and vegetables were out of the question. My body views those things as "foreign" and starts attacking the lining of my gut. I now drink daily protein shakes with an addition of "super greens" to fulfill my nutritional needs.
Meats were also out of the question. Now we know why...when you have a damaged, flat intestine the opening is about the size of the eye of a needle. Food just isn't going to pass.
Come to find out, that is the reason why I struggled during my very first Ironman in Utah, last May. I was very prepared for the race and the distances were not a problem. I had assumed that my issues were due to the fact that I lost some of my medication during the beginning of the bike ride. I now know that the bagel I ate in T1 (after swallowing lots of air while swimming out in the frigid water), was going to give me hours of trouble over the course of a 15-hour event because of the severe stricture in my ileum. In fact, I would spend hours on the bike barely able to maintain aero position because of pain. My abdomen appeared as though I was 5 months pregnant. Forcing down food was not even an option.
I was fortunate to make it through the race, since nutrition was a big issue for me. I survived on Cytomax and easily digested foods like pretzels, chips, and Gu chomps. The scenery during the race was absolutely amazing. Utah is a beautiful state. I spent much time on the bike reflecting on the cards I had been dealt the past few months before the race. Not many patients newly diagnosed with Crohn's Disease are able to attempt an Ironman event. My physicians both said, "it just doesn't happen". My family physician and friend later confided in me that he did not think I would be able to do it.
I knew this was a chance of a lifetime for me, and I savored every moment, despite the pain. I learned a lot about myself that day. I learned just how strong I really was, both physically and mentally. I listened to my body and despite the abdominal pain, my vital signs were stable and I felt great. I had a physician called to meet me in T2 for evaluation to ensure that it was safe for me to continue the marathon. We both agreed that while it was likely my Crohn's acting up, my heart rate was perfect, and I was hydrated well. I continued on and finished the race feeling strong. I was disappointed that I was way off my training pace, but numerous stops from the pain and meeting with a physician, took time.
So, if we flash forward a year later, I am in training again. I never thought I would do another Ironman, but I am on track to complete number two in May.
I am at home in the water, on my bike, and on a long run. I feel absolutely no stress, just peace. My heart rate is constantly monitored and I "listen" for any aches and pains. I love to feel each muscle working to propel me forward. With each breath, I am just thankful to be alive and doing something I enjoy so much.
I will never forget what one of my close friends told me. She said, "Marcia, you are MADE for this. You ARE an Ironwoman. Your life has been one big Ironman event and you have always been prepared to do this. You were born to do this."
Sounds crazy, but she was right. Through every major challenge in my life, exercise has brought me through to the other side, stronger than ever. My faith in God and the realization that He has given me strength to do all things, comes second nature to me.
I don't know what lies ahead. I will always have Crohn's Disease and it can sneak up on me at any moment. I will have more tests later this month to ensure that there is no current hidden damage in my intestines. I will also follow-up for a possible small abdominal hernia. It may require surgery, but I am not going to let myself worry about that until I am told it is an issue.
I plan on being at the start line of Ironman Texas on May 21st in The Woodlands, if the good Lord allows me. Along with 2000 other athletes, I will attempt to once again swim 2.4 miles, bike 112 miles, and run 26.2 miles.
It might sound crazy to some, but for me, it is a comforting thought to know that my body is still strong. I am constantly in training to fight this disease. My chances are better if I am in phenomenal physical and emotional shape. For me, this means endurance training. It's deeply engrained in my heart and soul. I know that some of you will never understand this, and that is okay. For the worriers out there, I promise to continue listening to my body.
But I WON'T keep "walking on eggshells". I WILL keep doing the things I love so that I can be a better wife, mother, friend, nurse, and coach.
For now, I will enjoy this mountain top, and try not to worry about what the future might hold.
I will enjoy TODAY and the good health and energy I have. I will make the best of each moment with my children and my family.
Are you currently on a mountain top, but afraid to enjoy each moment out of fear that something bad is sure to come? Does it seem like any time you come upon good times, rough times are sure to follow? Are you constantly holding your breath to see what comes next?
Let's remind one another not to forget to ENJOY our mountain tops. Savor each moment and seize the day. We should not worry about tomorrow, as it only interferes with our ability to cherish today.
"Let the good times roll...."
Wednesday, January 12, 2011
The Girl With 9 Lives...
Writing this blog has proven to be therapeutic for me. I have encountered some extremely strange things over the years. I have lived through more in my 37 years, than some people will in a lifetime. Every now and again, I have to wonder why my life has been spared so many times. I kind of feel like a cat with 9 lives! I do know, however, that one day my luck will run out. I also know that I am ready for that day, whether it comes tomorrow or in 60 years.
Besides writing for self-therapy (ha!), I also want to provide my sons with something to read from me one day. Living with a serious health issue causes me to confront the possibility of dying young, more so than I would like. However, I also know that any one of us could get hit by a train tomorrow. Life has a way of ending suddenly like that. I know because mine has almost ended suddenly like that on more than one occasion.
What I am about to disclose is a bizarre situation. It is indeed purely fact, and not fiction. Those closest to me have heard the story. I still can't quite believe it happened, but it is encounters such as follows, that force me outside of my "comfort zone" and into the world of blogging/writing to journal my experiences.
It was the fall of 1991. I was a freshman at the University of Texas at San Antonio. My parents and I decided for me to attend college somewhere close to them, as I tended to have a few health issues. We know now, that my Crohn's Disease has probably played a role in my life for many years.
In any case, my parents had just moved to Laredo, TX for a short time after I graduated high school. My dad played a huge part in the development and expansion of IBC (International Bank of Commerce). He and my mother were to live in Laredo for a few months, and then relocate to San Antonio where my father would run the bank's service center.
It may have been my first trip "home" since leaving for college. You know how that goes. You are having such a grand time with your new life and new friends, that mom and dad are seldom missed.
In any case, I was ready to see my parents for the weekend, and heading out of San Antonio a little later than planned. This was back before the days when everyone had a cell phone. I was driving my first car (Nissan Sentra) and enjoying the easy, 2.5 hour drive down to Laredo.
Suddenly, my car sputtered to a stop. The air smelled funny and there was smoke coming out of the front hood. The moment was surreal. It was starting to get dark outside, and I was in disbelief that this could have just happened. I waited in the car for a few minutes contemplating my next step. I recalled wondering if I should make a sign to post in the window, saying I needed help, or WHAT?! This sounds like a silly idea, but I tell you, when I looked out the window, it looked like a ghost town. I could not see any signs of civilization within my eye sight. I had a deep, sinking feeling in my gut. I knew this night might not end well. Stepping outside of my car and looking around again, I realized this looked just like a person's worst nightmare.
I waited for a good half hour, hoping that a police officer might drive by. I saw one older man, driving a truck full of watermelons pass by me. In hindsight, I wish I would have asked HIM for a ride. Instead, I waited for a bit longer, but as it grew darker, I became concerned.
Finally, a dirty white pick-up truck approached me heading north. There were two men in the truck. I glanced at the back of their pick-up and asked if they could give me a ride to the nearest pay phone. They laughed and said sure, it was about 2 miles up the road. I guess in my head, I thought I would ride in the back of the truck if it was just a ways down the road. Instead, I found myself getting in the front of the truck with the two strangers.
Not only was I now IN the truck with two complete strangers, but there was a cooler sitting between the driver and the other male passenger. I was forced to sit up against the cooler, and realized all too quickly that this strange man would be sitting WAY too close for my comfort. The men began to converse in Spanish. I had taken a few years of Spanish in high school, but did not have the ability to translate what they were saying. They were speaking quite fast. I did notice that we had just passed by a gas station. I asked about stopping, reminding them that I needed to use the pay phone to call my parents. My heart sank deeper and deeper.
I will never forget the disgusting face of the man who sat next to me. He was in my space and breathing in my face. His first sentence to me in English was, "You are such a pretty girl, why would you get in the car with people you don't know?". I tried my best not to panic, but fear was setting in. Even as I write this, my heart is beginning to beat faster. I can almost smell the dirty truck and the filthy men inside of it.
My head was spinning. The next words I heard were: "You will be staying with us tonight. Would you like that?". I was in shock. I couldn't move or speak. I just shook my head, no. Suddenly, the man placed his hand upon my leg. He told me again how pretty I was and asked if he could touch my leg. I shook my head, yet he placed his hand on my thigh. The next question he asked, was if he could kiss me. He began to talk about how I would stay the night with them at their hotel and they would take good care of me.
Right then and there, my life literally flashed before my eyes. Just like you read about in stories or watch in movies. There it was: my life flashing before my eyes on fast forward. At that moment, I remember thinking that I would be raped for sure, but how would they kill me? I memorized every detail of that dirty truck. I listened to the men talking in Spanish over my head. I imagined that they were plotting what to do with me. The driver was a younger man, maybe in his mid-20's. He looked at me a few times. Did I catch a glimmer of compassion in his eyes? I thought that I did. Perhaps a trace. I gave him a pleading look. Spare me. Please! The stranger to my right slid his hand up my thigh and grabbed my hand.
My head was spinning so fast, I felt like I couldn't breathe. I began to hyperventilate, and fought back vomiting. I began to do the only thing I could think of doing. I began to pray. I cried out, not knowing what I was saying. I remember calling out for God to help me, save me, spare me...
Then the anger set in, the fighting instinct that I will have until the day I die, came to life. I began to breathe deep and once again memorized every detail of the truck. We were passing by yet another small city. I knew this meant war. They were not going to stop and let me out.
I will never forget what happened next. I made eye contact with the driver once more. YES! I DID see a glimpse of compassion in his eyes. Something passed between us that moment. I will always be grateful for the sympathy he had, and the grace that he delivered at that moment. He suddenly slowed down in the middle of the highway. I knew this was my chance. I took it. With all my might, I elbowed the man next to me in the stomach. I lunged toward the door, opened it and toppled out. My head still spinning, and my legs shaking, I pulled myself up and ran like there was no tomorrow.
I ran down some sort of grassy incline. I would later find scratches from thorns and gravel on my legs. I came across a small convenience store. I burst into the store and felt like angels had been placed in my path. An older couple (I found out later they owned the store), approached me. The man asked, "Honey, are you alright? No, you are NOT.". His wife embraced me as he called the police. I cried with relief and from sheer exhaustion. We placed a call to my parents to come and get me.
I was only 17, and had to endure a rigorous interviewing from the police about whether or not I was touched or raped. Thank God, I was not. They took a description of the men and the truck and left to pursue them.
The incident was terrifying, yet also embarrassing. I told few people. I realize now that I dealt with post-traumatic stress syndrome after the ordeal. I would wake up in the night seeing the man's face up close to mine, feel his hand on my knee. My heart would be racing and I would be drenched in sweat. Almost every time I closed my eyes, for nights on end, I would see their faces. I would hear them telling me that I would be staying with them....Even writing this 20 years later, I still feel the fear, and remember it like it was yesterday. But I need to revisit times like these every now and again. It is a good reminder of the second chance that I was given. What a gift. A precious gift.
If your life has been spared, have you ever stopped to think about what you will do with your second chance? Are you living a life worthy of the second chance you were given? If I am honest with myself, the answer is "no", not always. May I be more mindful of the words that I say, the way that I love, and how much I laugh and enjoy the small things in life.
You may not even know about a close call you had, or a time you should have been dealt your last hand. Perhaps you were spared and don't even realize it. We should live each day as it might be our last. Creating a legacy for those we leave behind.
As 2011 begins, may I remember one of my "9 lives" experiences, and grow from it. Never taking my second chance lightly, but instead embracing it, and listening to what it is I am called to do in this life.
Besides writing for self-therapy (ha!), I also want to provide my sons with something to read from me one day. Living with a serious health issue causes me to confront the possibility of dying young, more so than I would like. However, I also know that any one of us could get hit by a train tomorrow. Life has a way of ending suddenly like that. I know because mine has almost ended suddenly like that on more than one occasion.
What I am about to disclose is a bizarre situation. It is indeed purely fact, and not fiction. Those closest to me have heard the story. I still can't quite believe it happened, but it is encounters such as follows, that force me outside of my "comfort zone" and into the world of blogging/writing to journal my experiences.
It was the fall of 1991. I was a freshman at the University of Texas at San Antonio. My parents and I decided for me to attend college somewhere close to them, as I tended to have a few health issues. We know now, that my Crohn's Disease has probably played a role in my life for many years.
In any case, my parents had just moved to Laredo, TX for a short time after I graduated high school. My dad played a huge part in the development and expansion of IBC (International Bank of Commerce). He and my mother were to live in Laredo for a few months, and then relocate to San Antonio where my father would run the bank's service center.
It may have been my first trip "home" since leaving for college. You know how that goes. You are having such a grand time with your new life and new friends, that mom and dad are seldom missed.
In any case, I was ready to see my parents for the weekend, and heading out of San Antonio a little later than planned. This was back before the days when everyone had a cell phone. I was driving my first car (Nissan Sentra) and enjoying the easy, 2.5 hour drive down to Laredo.
Suddenly, my car sputtered to a stop. The air smelled funny and there was smoke coming out of the front hood. The moment was surreal. It was starting to get dark outside, and I was in disbelief that this could have just happened. I waited in the car for a few minutes contemplating my next step. I recalled wondering if I should make a sign to post in the window, saying I needed help, or WHAT?! This sounds like a silly idea, but I tell you, when I looked out the window, it looked like a ghost town. I could not see any signs of civilization within my eye sight. I had a deep, sinking feeling in my gut. I knew this night might not end well. Stepping outside of my car and looking around again, I realized this looked just like a person's worst nightmare.
I waited for a good half hour, hoping that a police officer might drive by. I saw one older man, driving a truck full of watermelons pass by me. In hindsight, I wish I would have asked HIM for a ride. Instead, I waited for a bit longer, but as it grew darker, I became concerned.
Finally, a dirty white pick-up truck approached me heading north. There were two men in the truck. I glanced at the back of their pick-up and asked if they could give me a ride to the nearest pay phone. They laughed and said sure, it was about 2 miles up the road. I guess in my head, I thought I would ride in the back of the truck if it was just a ways down the road. Instead, I found myself getting in the front of the truck with the two strangers.
Not only was I now IN the truck with two complete strangers, but there was a cooler sitting between the driver and the other male passenger. I was forced to sit up against the cooler, and realized all too quickly that this strange man would be sitting WAY too close for my comfort. The men began to converse in Spanish. I had taken a few years of Spanish in high school, but did not have the ability to translate what they were saying. They were speaking quite fast. I did notice that we had just passed by a gas station. I asked about stopping, reminding them that I needed to use the pay phone to call my parents. My heart sank deeper and deeper.
I will never forget the disgusting face of the man who sat next to me. He was in my space and breathing in my face. His first sentence to me in English was, "You are such a pretty girl, why would you get in the car with people you don't know?". I tried my best not to panic, but fear was setting in. Even as I write this, my heart is beginning to beat faster. I can almost smell the dirty truck and the filthy men inside of it.
My head was spinning. The next words I heard were: "You will be staying with us tonight. Would you like that?". I was in shock. I couldn't move or speak. I just shook my head, no. Suddenly, the man placed his hand upon my leg. He told me again how pretty I was and asked if he could touch my leg. I shook my head, yet he placed his hand on my thigh. The next question he asked, was if he could kiss me. He began to talk about how I would stay the night with them at their hotel and they would take good care of me.
Right then and there, my life literally flashed before my eyes. Just like you read about in stories or watch in movies. There it was: my life flashing before my eyes on fast forward. At that moment, I remember thinking that I would be raped for sure, but how would they kill me? I memorized every detail of that dirty truck. I listened to the men talking in Spanish over my head. I imagined that they were plotting what to do with me. The driver was a younger man, maybe in his mid-20's. He looked at me a few times. Did I catch a glimmer of compassion in his eyes? I thought that I did. Perhaps a trace. I gave him a pleading look. Spare me. Please! The stranger to my right slid his hand up my thigh and grabbed my hand.
My head was spinning so fast, I felt like I couldn't breathe. I began to hyperventilate, and fought back vomiting. I began to do the only thing I could think of doing. I began to pray. I cried out, not knowing what I was saying. I remember calling out for God to help me, save me, spare me...
Then the anger set in, the fighting instinct that I will have until the day I die, came to life. I began to breathe deep and once again memorized every detail of the truck. We were passing by yet another small city. I knew this meant war. They were not going to stop and let me out.
I will never forget what happened next. I made eye contact with the driver once more. YES! I DID see a glimpse of compassion in his eyes. Something passed between us that moment. I will always be grateful for the sympathy he had, and the grace that he delivered at that moment. He suddenly slowed down in the middle of the highway. I knew this was my chance. I took it. With all my might, I elbowed the man next to me in the stomach. I lunged toward the door, opened it and toppled out. My head still spinning, and my legs shaking, I pulled myself up and ran like there was no tomorrow.
I ran down some sort of grassy incline. I would later find scratches from thorns and gravel on my legs. I came across a small convenience store. I burst into the store and felt like angels had been placed in my path. An older couple (I found out later they owned the store), approached me. The man asked, "Honey, are you alright? No, you are NOT.". His wife embraced me as he called the police. I cried with relief and from sheer exhaustion. We placed a call to my parents to come and get me.
I was only 17, and had to endure a rigorous interviewing from the police about whether or not I was touched or raped. Thank God, I was not. They took a description of the men and the truck and left to pursue them.
The incident was terrifying, yet also embarrassing. I told few people. I realize now that I dealt with post-traumatic stress syndrome after the ordeal. I would wake up in the night seeing the man's face up close to mine, feel his hand on my knee. My heart would be racing and I would be drenched in sweat. Almost every time I closed my eyes, for nights on end, I would see their faces. I would hear them telling me that I would be staying with them....Even writing this 20 years later, I still feel the fear, and remember it like it was yesterday. But I need to revisit times like these every now and again. It is a good reminder of the second chance that I was given. What a gift. A precious gift.
If your life has been spared, have you ever stopped to think about what you will do with your second chance? Are you living a life worthy of the second chance you were given? If I am honest with myself, the answer is "no", not always. May I be more mindful of the words that I say, the way that I love, and how much I laugh and enjoy the small things in life.
You may not even know about a close call you had, or a time you should have been dealt your last hand. Perhaps you were spared and don't even realize it. We should live each day as it might be our last. Creating a legacy for those we leave behind.
As 2011 begins, may I remember one of my "9 lives" experiences, and grow from it. Never taking my second chance lightly, but instead embracing it, and listening to what it is I am called to do in this life.
Life In The Slow Lane
Last night, I set out to enjoy a nice, relaxing long swim. I had downloaded some great music to keep me in the appropriate zone. After a hard run session earlier, I was really looking forward to an easy swim. My warm-up went well and just as I was settling into a nice rhythm, I was surrounded by testosterone.
Yes, I mean MEN. The lap lanes were fairly crowded (which is why I typically go in the early afternoon), and there were men splashing around on each side of me. I offered one guy waiting his turn to "swim in" with me. He looked fairly athletic so I guessed that he might understand the concept. He did not. He swam in one half of the lane, while I cramped myself in the other half. I was about to stop and ask suggest we "circle swim", but decided to just tough it out.
I have learned over the years as a female triathlete, that men cannot seem to stand it if you can swim faster than them in the pool (or bike faster, or run faster..!). I can be minding my own business in a nice, steady, (slow), rhythm when testosterone takes over. This happened last night. Nearly every 100yards, I would have one of the guys start at the same time as me and sprint his way to the other side of the pool. He was obviously wanting to "beat" me, only I was not racing.
The first few times I let them go zipping past me, refusing to get out of my zone. About the fourth or fifth time, I couldn't resist. I am almost always up for a challenge! :)
Needless to say, this began a war of who could swim faster than whom. My comfortable workout turned into an all out race to see how many times I could beat these guys as they raced their ONE length down the pool. I enjoyed the push for a few times, but quickly realized they were taking turns "racing" me.
I was getting tired. Tired AND annoyed. I gave it a few more hundred yards of pushing, and then realized it was almost time to get out. I had pushed almost my entire 50-minute session. My HR was higher than I had wanted it and I had defeated my whole purpose of having a nice "relaxing" long swim.
Later on, I pondered what had happened. I can laugh at myself as an athlete and coach. I know better than to fall into the trap of letting someone else challenge or push you, especially when you are wanting a relaxing workout. I tell my athletes not to let this happen to them, yet do their OWN thing and ignore the other person. They may be doing their 25 yard sprints (like last night), while you are doing your long, aerobic swim. Therefore, you can't compare "apples to apples".
This applies to our daily lives as well. How many times are we smooth sailing on cruise control, when someone comes in and "challenges" us? How many times do we fall for the "challenge" as a detriment to ourselves or perhaps our families?
Perhaps you were cruising along on a modest budget and saving money, when your neighbor comes zipping by with his fancy car. On top of that, he or she also dresses in the latest fashion. He has a brand new house twice the size of yours.
Will you abandon your plans to "chase" and "catch" him? Will you sacrifice what you know is best for you, just to try and "play the game" with someone else?
REMEMBER...we are all in different "lanes". One person's goal may not be another person's goal. Take the time to reach yours. Slowly and steadily moving towards YOUR goals and dreams, at YOUR pace. When you try to compete with others in another lane, you are likely to drift off your own personal course, at a detriment to yourself. Sometimes this ruins your initial plan, and can cause strife or heartache.
Stay focused on what you know and believe to be true and just. Let those in the fast lane move right ahead. Chances are, they will run out of steam, crash and burn, and you will find yourself in the lead because you stuck with your game plan!
Don't get me wrong, my athletes, there is absolutely NOTHING wrong with a little friendly competition. It is encouraged and good for you at times. But when it comes down to tough training, or the "game of life", choose carefully with whom and when you choose to compete.
There is a master plan for your life, and it's already been laid out for you by a power much greater than man. Take your time to find the right course for YOU, and enjoy each "stroke" along the way. Don't be affected by those around you. Stay focused and enjoy "life in the slow" lane. It's really not half bad! :)
Yes, I mean MEN. The lap lanes were fairly crowded (which is why I typically go in the early afternoon), and there were men splashing around on each side of me. I offered one guy waiting his turn to "swim in" with me. He looked fairly athletic so I guessed that he might understand the concept. He did not. He swam in one half of the lane, while I cramped myself in the other half. I was about to stop and ask suggest we "circle swim", but decided to just tough it out.
I have learned over the years as a female triathlete, that men cannot seem to stand it if you can swim faster than them in the pool (or bike faster, or run faster..!). I can be minding my own business in a nice, steady, (slow), rhythm when testosterone takes over. This happened last night. Nearly every 100yards, I would have one of the guys start at the same time as me and sprint his way to the other side of the pool. He was obviously wanting to "beat" me, only I was not racing.
The first few times I let them go zipping past me, refusing to get out of my zone. About the fourth or fifth time, I couldn't resist. I am almost always up for a challenge! :)
Needless to say, this began a war of who could swim faster than whom. My comfortable workout turned into an all out race to see how many times I could beat these guys as they raced their ONE length down the pool. I enjoyed the push for a few times, but quickly realized they were taking turns "racing" me.
I was getting tired. Tired AND annoyed. I gave it a few more hundred yards of pushing, and then realized it was almost time to get out. I had pushed almost my entire 50-minute session. My HR was higher than I had wanted it and I had defeated my whole purpose of having a nice "relaxing" long swim.
Later on, I pondered what had happened. I can laugh at myself as an athlete and coach. I know better than to fall into the trap of letting someone else challenge or push you, especially when you are wanting a relaxing workout. I tell my athletes not to let this happen to them, yet do their OWN thing and ignore the other person. They may be doing their 25 yard sprints (like last night), while you are doing your long, aerobic swim. Therefore, you can't compare "apples to apples".
This applies to our daily lives as well. How many times are we smooth sailing on cruise control, when someone comes in and "challenges" us? How many times do we fall for the "challenge" as a detriment to ourselves or perhaps our families?
Perhaps you were cruising along on a modest budget and saving money, when your neighbor comes zipping by with his fancy car. On top of that, he or she also dresses in the latest fashion. He has a brand new house twice the size of yours.
Will you abandon your plans to "chase" and "catch" him? Will you sacrifice what you know is best for you, just to try and "play the game" with someone else?
REMEMBER...we are all in different "lanes". One person's goal may not be another person's goal. Take the time to reach yours. Slowly and steadily moving towards YOUR goals and dreams, at YOUR pace. When you try to compete with others in another lane, you are likely to drift off your own personal course, at a detriment to yourself. Sometimes this ruins your initial plan, and can cause strife or heartache.
Stay focused on what you know and believe to be true and just. Let those in the fast lane move right ahead. Chances are, they will run out of steam, crash and burn, and you will find yourself in the lead because you stuck with your game plan!
Don't get me wrong, my athletes, there is absolutely NOTHING wrong with a little friendly competition. It is encouraged and good for you at times. But when it comes down to tough training, or the "game of life", choose carefully with whom and when you choose to compete.
There is a master plan for your life, and it's already been laid out for you by a power much greater than man. Take your time to find the right course for YOU, and enjoy each "stroke" along the way. Don't be affected by those around you. Stay focused and enjoy "life in the slow" lane. It's really not half bad! :)
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